Comments on: The Power of Discovery: Mayo Clinic Laboratories Autoimmune Neurology Service

By: Tim Drabant

Tim Drabant — Sat, 23 Feb 2019 21:40:49 +0000

Somehow my reply got lost. I only had an MRI which showed micro-bleeds that might be black mold exposure related. My eyes had issues my bloodpressure was high. Neurologist here Jon Ween not sure. That was almost 5 years ago.

By: Sadenia Stefanchik

Sadenia Stefanchik — Sat, 23 Feb 2019 06:38:29 +0000

How can I get my daughter to be a part of this? She has been sick for 6 years and I can’t even explain what we have been through. We need help. Please let me know.

By: Tammy

Tammy — Fri, 22 Feb 2019 23:07:49 +0000

Where do I begin, I’ve been to 2 arthritis specialists and neurologist. Many blood test. I’ve been tested many times for Lyme. My lasted test for Ana is positive. So he’s said I have some kind of arthritis. But feel it’s something else. Not sure what else to do.

By: Scotti Fralicks

Scotti Fralicks — Fri, 22 Feb 2019 13:23:59 +0000

Sounds awesome, 1977 started my autoimmune diseases, Bell’s palsy, 1987 Guillian Barre, then just a spiral of fibromyalgia, osteoarthritis, spinal stenosis, neuropathy, and recently Myasthenia Gravis….. I also have a sister with MS….. SO autoimmune diseases is our business….I am in lots of pain, loosing balance, weak arms and spongy legs….swelling is a problem…. brain fog…. what could the Mayo Clinic help me with…. thank you
Scotti Fralicks

By: Regina Britton

Regina Britton — Wed, 20 Feb 2019 23:58:16 +0000

Are these tests accurate for individuals with primary immune deficiencies receiving SCIG? I have CVID with T cell dysfunction and some pretty obvious autoimmune issues, especially CNS related. Standard autoimmune tests are not proving useful or clear cut, leaving doctors unsure about diagnosis and me to suffer.